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About the CLL Information Group (CIG)Mission MissionWELCOME - The mission of the CLL Information Group (CIG) is to provide disease-specific information to chronic lymphocytic leukemia (CLL) patients and caregivers, to increase awareness about the disease, and to gain increased visibility in order to achieve greater support from the medical community. Thus, our priorities are threefold:
And finally, as we grow, we hope to become able to sponsor research and clinical trials focused specifically on CLL/SLL and its complications.
HistoryCIG was founded at the Lymphoma Research Foundation (LRF) annual North American Educational Forum on Lymphoma in San Francisco, CA in 2004 at the suggestion of several hematologists, who felt that CLLers needed to band together for their mutual benefit. Since that time we have held several exciting teleconferences with top CLL practitioners, and been successful in arranging for additional CLL specific sessions at seminars and workshops. We have enjoyed the benefit of top doctors at these presentations.
CIG is not a discussion group; it is a patient advocacy group that dispenses information to people with CLL/SLL and their loved ones. However, we do have a related group where frequent and interesting discussions do take place. Actually, the creation of this discussion group precedes the establishment of CIG by several years. (To subscribe to this group, send an e-mail to: cllsll-subscribe@yahoogroups.com. Once subscribed, post your questions, opinions, data, and information to: cllsll@yahoogroups.com.)
In February 2007, CIG created this website through a collaborative arrangement with the LRF. LRF is the nation’s largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and healthcare professionals with information on the disease. This collaborative arrangement helps both organizations to better serve the lymphoma community.
Leadership and FundingWe are fortunate to enjoy the benefit of the constant advice of a number of CLL experts, who also help on our related discussion group. Also, the LRF supports much needed support. We do hope to grow into a more formal organization, with a board of directors and an official scientific advisory board. We also plan to expand into an international organization. Thus far we have been funded primarily through a contribution from a generous patient, but we do hope to increase the reach of our funding so that we are in a stronger position to organize some of the patient benefits we have planned. Ultimately, it is CIG's hope to have a hand in funding CLL specific research.
Contact UsWe can be reached through the web at www.cllinfogroup.org. You may also e-mail CIG's founder, John Balan.
Please send mail on behalf of CIG to: CLL Information Group c/o Lymphoma Research Foundation 115 Broadway, 13th Floor New York, NY 10006
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